The RARE List™ is comprised of approximately 7,000 different rare diseases and disorders affecting more than 300 million people worldwide.  This is a list of rare diseases defined in the United States where a prevalence of less than 200,000 cases is the primary criteria.

Rare Disease List broken down alphabetically, with links to organizations whenever possible. Nearly all 7000 or so rare diseases are on this list! Pudendal Neuralgia and Tarlov Cyst Disease.

Rare Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare diseases and their families.

Rare Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare diseases and their families.

Statistics and Figures on Prevalence of Genetic and Rare Diseases Although rare and genetic diseases, and many times the symptoms, are uncommon to most doctors, rare diseases as a whole represent a…

Statistics and Figures on Prevalence of Genetic and Rare Diseases Although rare and genetic diseases, and many times the symptoms, are uncommon to most doctors, rare diseases as a whole represent a…

Support RareDiseaseDay February28 and Wear Jeans! The last day of February is Rare Disease Day.

Support and Wear Jeans! The last day of February is Rare Disease Day. is a rare disease

Rare Disease Day: Now I'm Rare poster

Rare Disease Day: Now I’m Rare poster

Shoutout for all those fighting invisible illnesses such as CRPS / RSD / EDS / Lyme / Lupus / CFS / Fibromyalgia

Shoutout for all those fighting invisible illnesses such as CRPS / RSD / EDS / Lyme / Lupus / CFS / Fibromyalgia / MS

24 Things People With Rare Diseases Wish Others Understood. Thank goodness I've now found a neurosurgeon and neurologist who DO know more than I do!

24 Things People With Rare Diseases Wish Others Understood

Real people living with rare diseases share their experiences and what they wish others knew. Those with rare diagnoses and their families face a lot of unique challenges that may be difficult for others to understand.

Meme Monday: Our Favorite Rare Disease Web Memes

There are many chronic fatigue syndrome symptoms, which vary depending on levels of stress, how often you exercise, and how well you eat.

The Epidemic No One Is Talking About: Rare Disease [Infographic]

Rare diseases affect more people than AIDS and cancer combined. And yet, they are rarely discussed on national media or given the funding they deserve.

17 Things You’ll Only Understand If You Have A Rare Disease

17 Things You'll Only Understand If You Have A Rare Disease

Humor, otherwise we'd lose the rest of what sanity we have left.

18 Things Only People Who Hate Camping Understand

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